I'm sitting here at the Alfred Hospital at the bedside of my son while his body shuts down.
Got a phone call Thursday morning to come in. Been nearly 3 days sitting here with very little sleep while he slowly deteriorates before my eyes.
He's been in here for 9 months tomorrow after undergoing a bone marrow transplant Itwhich has obviously failed.
we've had our good days where we thought he'd be smashing his underlying condition of adrenomyleneurophy and then we've had our bad days where we've thought he wouldn't make it.
It's been a total emotional roller coaster ride.
On one hand I selfishly dont want him to go, and on the other I know it's the best thing for him.
Please keep my darling boy Stephen (27 years old) in your thoughts and prayers.
Sue
pauline said
08:04 PM Aug 27, 2011
Sue, what can anyone say at this time, nothing that will make it right and go away, as one mum to another all I can say is will be thinking of you at this terrible time. Pauline
Happywanderer said
08:06 PM Aug 27, 2011
Oh Sue. I'm so sorry to hear that news. I did ask on here how he was going, just after your op, but you may not have seen it. I have been thinking of him and praying he would come through. So sorry to see he, Oh what do you say. Love and best wishes to you all. Marj
jonathan said
08:11 PM Aug 27, 2011
My thoughts and prayers are with you Sue .. My son Steven is almost of the same age ..
Jonathan
goinsoon said
08:16 PM Aug 27, 2011
Our hearts bleed for you, be assured that our thoughts and prayers are with you, we just cannot even begin to realise the grief of losing a child, no matter what age
rockylizard said
08:16 PM Aug 27, 2011
Gday...
I too have had my life touched by a child with the Big C - but despite that, no matter what I may think, I can only imagine what you are going through.
Just remember all on here will be feeling your pain and no matter which way it finally goes, he will never be far from your thoughts and heart.
Strength to you and all your family.
John
Cruising Granny said
08:32 PM Aug 27, 2011
While it's always a sad thing to outlive our children, always remember the happy times. You were blessed to have him for the short time. Everything happens for a reason. I have no idea what you're feeling but my thoughts are with you.
Rip and Rosie said
08:46 PM Aug 27, 2011
hugs
Cupie said
09:04 PM Aug 27, 2011
Sue ..
Tears in the eyes & comforting thoughts for you & your boy.
G
gubby said
09:13 PM Aug 27, 2011
Sue, I know no-one can say anything that will make any difference to the way you're feeling, I know that as we lost a fifteen year old son in November '95 (car accident).
You and your son will be in our thoughts and prayers, be strong and let your family be your support and strength, don't be frightened to lean on each and tell each other exactly how and what you are feeling.
I will PM you my phone No. just in case you need to talk, don't feel obliged. It's there if you need it....
Ma said
09:33 PM Aug 27, 2011
I wish there were some words of reassurance for you Sue. All I can do is send my love and thoughts and prayers.
Travel Bug said
09:41 PM Aug 27, 2011
Sue, I am so very sorry. My heart is heavy for you. I have wondered how he was going....but was afraid to ask.
I have no profound words of wisdom that can make you feel better and I cannot imagine the grief that goes with losing your child, but please know that you are in my thoughts.
Hugs, Hugs, Hugs.
Helena said
10:18 PM Aug 27, 2011
Our thoughts are with you too Sue hugs to you and your son. Helena.
johnq said
10:26 PM Aug 27, 2011
Sue, I am so sorry this has happened to your dear son Stephen. Your feelings are understandable. How powerless we feel and how complex our feelings are as parents. Stephen, you and your family are foremost in my thoughts and prayers. May God be with you all today and always. You are not alone. John
Gerty Dancer said
10:29 PM Aug 27, 2011
Deepest sympathies to you Sue, a huge warm hug to you.
justjo said
10:48 PM Aug 27, 2011
So very sorry Sue, Hugs to you, so hard to watch your child slip away x
bronnie said
11:02 PM Aug 27, 2011
I am so sorry Sue, to hear about your dear son Stephen. You, Stephen and your family are in my thoughts and prayers.....Bronnie
Vic said
11:29 PM Aug 27, 2011
Our sincere thoughts are with you Sue, will be thinking of you all at this time,
Vic
milo said
11:34 PM Aug 27, 2011
Hi sue, dont know what to say, just know that were all thinking of you.
sucastja said
02:02 AM Aug 28, 2011
Thank you everyone for your kind thoughts.
Stephen passed away tonight (27th August) at 9.43 p.m. He died very peacefully with no pain and a smile on his face. If you have to watch a son die, it's probably the best way to go. I feel huge relief that the fight is over for him. I've had many tears and also tried to be strong for my remaining daughter and son. No doubt there will be many more tears to come but wonderful memories of the special young man I had the privilege of being mother of.
I feel extremely privileged to have shared a major part of my life with this gorgeous young man
RIP Stephen xoxoxoxo
Sheba said
02:11 AM Aug 28, 2011
I can add nothing more to what every-one else has expressed already Sue. My thoughts are with you . Rest peacefully now Stephen.
Sheba.
valnrob said
07:14 AM Aug 28, 2011
Prayer for your family. God bless you all.
rockylizard said
07:52 AM Aug 28, 2011
sucastja wrote:
Thank you everyone for your kind thoughts.
Stephen passed away tonight (27th August) at 9.43 p.m. He died very peacefully with no pain and a smile on his face. If you have to watch a son die, it's probably the best way to go. I feel huge relief that the fight is over for him. I've had many tears and also tried to be strong for my remaining daughter and son. No doubt there will be many more tears to come but wonderful memories of the special young man I had the privilege of being mother of.
I feel extremely privileged to have shared a major part of my life with this gorgeous young man
RIP Stephen xoxoxoxo
Gday...
Sincerest condolences to you and all your family.
John
_wombat_ said
07:59 AM Aug 28, 2011
Our condolences to you and all your family, Stephen is resting now. R.I.P.
The Wombats
ken thomas said
08:59 AM Aug 28, 2011
Deepest sympathy Sue Its still hard even when you know the end is near Ken & Lyn
gubby said
08:59 AM Aug 28, 2011
So sorry Sue, Parents are not designed to outlive their offspring. It's an impossible time that I wouldn't wish upon anyone. Don't try too hard to be strong for your other son and daughter, they need to be able to see the grief and suffering that you are feeling, so that you can comfort each other as a family unit.
I'm sitting here at the Alfred Hospital at the bedside of my son while his body shuts down.
Got a phone call Thursday morning to come in. Been nearly 3 days sitting here with very little sleep while he slowly deteriorates before my eyes.
He's been in here for 9 months tomorrow after undergoing a bone marrow transplant Itwhich has obviously failed.
we've had our good days where we thought he'd be smashing his underlying condition of adrenomyleneurophy and then we've had our bad days where we've thought he wouldn't make it.
It's been a total emotional roller coaster ride.
On one hand I selfishly dont want him to go, and on the other I know it's the best thing for him.
Please keep my darling boy Stephen (27 years old) in your thoughts and prayers.
Sue
Pauline
I have been thinking of him and praying he would come through. So sorry to see he, Oh what do you say.
Love and best wishes to you all. Marj
My thoughts and prayers are with you Sue .. My son Steven is almost of the same age ..
Jonathan
Our hearts bleed for you, be assured that our thoughts and prayers are with you, we just cannot even begin to realise the grief of losing a child, no matter what age
Gday...
I too have had my life touched by a child with the Big C - but despite that, no matter what I may think, I can only imagine what you are going through.
Just remember all on here will be feeling your pain and no matter which way it finally goes, he will never be far from your thoughts and heart.
Strength to you and all your family.
John
You were blessed to have him for the short time.
Everything happens for a reason. I have no idea what you're feeling but my thoughts are with you.
Sue ..
Tears in the eyes & comforting thoughts for you & your boy.
G
Sue, I know no-one can say anything that will make any difference to the way you're feeling, I know that as we lost a fifteen year old son in November '95 (car accident).
You and your son will be in our thoughts and prayers, be strong and let your family be your support and strength, don't be frightened to lean on each and tell each other exactly how and what you are feeling.
I will PM you my phone No. just in case you need to talk, don't feel obliged. It's there if you need it....
I wish there were some words of reassurance for you Sue. All I can do is send my love and thoughts and prayers.
Sue, I am so very sorry. My heart is heavy for you.
I have wondered how he was going....but was afraid to ask.
I have no profound words of wisdom that can make you feel better and
I cannot imagine the grief that goes with losing your child, but please know
that you are in my thoughts.
Hugs, Hugs, Hugs.
I am so sorry this has happened to your dear son Stephen.
Your feelings are understandable. How powerless we feel and how complex our feelings are as parents.
Stephen, you and your family are foremost in my thoughts and prayers. May God be with you all today and always.
You are not alone.
John
Deepest sympathies to you Sue, a huge warm hug to you.
Vic
Stephen passed away tonight (27th August) at 9.43 p.m. He died very peacefully with no pain and a smile on his face. If you have to watch a son die, it's probably the best way to go. I feel huge relief that the fight is over for him. I've had many tears and also tried to be strong for my remaining daughter and son. No doubt there will be many more tears to come but wonderful memories of the special young man I had the privilege of being mother of.
I feel extremely privileged to have shared a major part of my life with this gorgeous young man
RIP Stephen xoxoxoxo
I can add nothing more to what every-one else has expressed already Sue. My thoughts are with you . Rest peacefully now Stephen.
Sheba.
Prayer for your family. God bless you all.
Gday...
Sincerest condolences to you and all your family.
John
Our condolences to you and all your family, Stephen is resting now. R.I.P.
The Wombats
Its still hard even when you know the end is near
Ken & Lyn
So sorry Sue, Parents are not designed to outlive their offspring. It's an impossible time that I wouldn't wish upon anyone. Don't try too hard to be strong for your other son and daughter, they need to be able to see the grief and suffering that you are feeling, so that you can comfort each other as a family unit.
Deepest sorrow for all of you..
Bruce and Marion.....
Rip and Rosie
Bob
Sue and family, I am so very sorry for your loss.