Woke up 4 weeks or so ago thinking I had been bitten by a spider under my left arm. Itchy as hell & wanted to tear it to pieces.
Went to the Dr & tried Cortisone Cream & Penicillin capsules. Neither worked, so today was booked several weeks ago it was cut out today. He casually says "you can go to work tomorrow".
Go back next Thursday to get the results & the stitches removed. Will be ****ting bricks until then.
Thanks jules47...working tomorrow will keep my mind off it for at least 24 hours. Gonna have to entertain my mind over Easter to keep any negative thoughts at bay. Perhaps some amber juice or a touch of Scotch will assist with this
Stitches removed today. Result not yet fully known. Basically this is what I know so far:
Cutaneous lymphoid hyperplasia (CLH) is considered a benign lymphoid reactive process that results from various antigenic stimuli and may have potential for progression to overt lymphoma. CLH lesions may closely resemble lymphoma both clinically and histologically. Clinically, lymphocytoma cutis is indistinguishable from cutaneous nodules found in lymphoma and leukemia.
They are conducting immunohistochemistry to try & come to a conclusion & as a result need to wait a further week for those answers.
They thought the initial biopsy test was B Cell Lymphoma, but today I was advised that the further tests confirm that it is T Cell Lymphoma. The Dr told me that it is the slow growing one, but also advises that there are two types of T Cell, the bad & the not quite as bad, whatever the hell that means.
As a result, more tests are being conducted as it is extremely difficult to isolate between the two types & I will not know the results until next week.
Whilst I know a bit more, the wait for results is agonising!
Thanks jules47. Just waiting now for that final result as to which T cell lymphoma it is & then the xrays/scans to show the extent of it to see where it is all at. Only then can we know just how it is going to be managed.
Keeping myself as busy as I can so that the mind doesnt start spinning too much
Just hang in there Bob.
It took them 5 weeks to work out mine was Non Hodgkins Lymphoma and even then I was sure there was still nothing wrong.
It's a long process but thankfully they know what they are doing.
All the best.
Just hang in there Bob. It took them 5 weeks to work out mine was Non Hodgkins Lymphoma and even then I was sure there was still nothing wrong. It's a long process but thankfully they know what they are doing. All the best.
They say mine is that as well, just more of exactly which of the T cell types it is.
Straight on to chemotherapy. 1st one before leaving hospital. Then back for a full day every 3 weeks which then went down to every 2 weeks as they said I was handling it well.
That went 9n from Easter to End of August I think it was then a months break.
Then a full month radiotherapy everyday except weekends.
At the end of all that Dr Steven Lane, wonderful man, said we got it.
From there I went on 3 monthly check up which entailed a blood test a few days before and a pet scan at the hospital. That took all last year.
This year I'm now on 6 monthly checkups with blood tests only.
Straight on to chemotherapy. 1st one before leaving hospital. Then back for a full day every 3 weeks which then went down to every 2 weeks as they said I was handling it well. That went 9n from Easter to End of August I think it was then a months break. Then a full month radiotherapy everyday except weekends. At the end of all that Dr Steven Lane, wonderful man, said we got it. From there I went on 3 monthly check up which entailed a blood test a few days before and a pet scan at the hospital. That took all last year. This year I'm now on 6 monthly checkups with blood tests only.
Glad to see you have had a good result. Not sure what to expect, but I have tried to relax knowing there is nothing I can do until all results/tests are completed. Seems to be working apart from the odd periods that the mind takes over of it's own accord!
Straight on to chemotherapy. 1st one before leaving hospital. Then back for a full day every 3 weeks which then went down to every 2 weeks as they said I was handling it well. That went 9n from Easter to End of August I think it was then a months break. Then a full month radiotherapy everyday except weekends. At the end of all that Dr Steven Lane, wonderful man, said we got it. From there I went on 3 monthly check up which entailed a blood test a few days before and a pet scan at the hospital. That took all last year. This year I'm now on 6 monthly checkups with blood tests only.
Glad to see you have had a good result. Not sure what to expect, but I have tried to relax knowing there is nothing I can do until all results/tests are completed. Seems to be working apart from the odd periods that the mind takes over of it's own accord!
That's all you can do. Leave it in the doctors hands, they know what they are doing.
Just go with the flow, I found that the easiest.
Until he said I would have to stay down in Brisbane for the radiotherapy . I jumped up and down until he found a place in Hervey Bay where I was staying with my son. Was able to go daily by myself for the radiotherapy .
Went to see the Dr today as the final biopsy result was in. There are no cancer cells present. I am required to undergo regular testing in case it changes course.
I was not expecting this & wonder just who is watching over me from up above. It has been an emotional rollercoaster & now I can let go of the stress that has been eating me up for the last 6 weeks.
Should buy a Lotto ticket, but I think I have used up all of my luck.
Thanks Gaylehere...cannot believe how fortunate I am, as long as it does not change course later on. At least I know what to expect & will be organising more trips for when we get the new used van in September/October. Looks like Merimbula to test the van is working as it should be then back to Traralgon for a Lions Club Conference, then early in the new year off across the Nullarbor for 7 or so weeks.
Thanks Gaylehere...cannot believe how fortunate I am, as long as it does not change course later on. At least I know what to expect & will be organising more trips for when we get the new used van in September/October. Looks like Merimbula to test the van is working as it should be then back to Traralgon for a Lions Club Conference, then early in the new year off across the Nullarbor for 7 or so weeks.
I wish it was tomorrow!
Great news fwdoz. Good luck for the future with lots of travel.
