I'm sitting here at the Alfred Hospital at the bedside of my son while his body shuts down.
Got a phone call Thursday morning to come in. Been nearly 3 days sitting here with very little sleep while he slowly deteriorates before my eyes.
He's been in here for 9 months tomorrow after undergoing a bone marrow transplant Itwhich has obviously failed.
we've had our good days where we thought he'd be smashing his underlying condition of adrenomyleneurophy and then we've had our bad days where we've thought he wouldn't make it.
It's been a total emotional roller coaster ride.
On one hand I selfishly dont want him to go, and on the other I know it's the best thing for him.
Please keep my darling boy Stephen (27 years old) in your thoughts and prayers.
Sue, what can anyone say at this time, nothing that will make it right and go away, as one mum to another all I can say is will be thinking of you at this terrible time. Pauline
Oh Sue. I'm so sorry to hear that news. I did ask on here how he was going, just after your op, but you may not have seen it. I have been thinking of him and praying he would come through. So sorry to see he, Oh what do you say. Love and best wishes to you all. Marj
Our hearts bleed for you, be assured that our thoughts and prayers are with you, we just cannot even begin to realise the grief of losing a child, no matter what age
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Goinsoon
I dont suffer from insanity; I enjoy every minute of it.
I too have had my life touched by a child with the Big C - but despite that, no matter what I may think, I can only imagine what you are going through.
Just remember all on here will be feeling your pain and no matter which way it finally goes, he will never be far from your thoughts and heart.
Strength to you and all your family.
John
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2006 Discovery 3 TDV6 SE Auto - 2008 23ft Golden Eagle Hunter Some people feel the rain - the others just get wet - Bob Dylan
While it's always a sad thing to outlive our children, always remember the happy times. You were blessed to have him for the short time. Everything happens for a reason. I have no idea what you're feeling but my thoughts are with you.
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20ft Roma caravan - Mercedes Benz Sprinter - SA-based at the moment. Transport has no borders.
Management makes the decisions, but is not affected by the decisions it makes.
Sue, I know no-one can say anything that will make any difference to the way you're feeling, I know that as we lost a fifteen year old son in November '95 (car accident).
You and your son will be in our thoughts and prayers, be strong and let your family be your support and strength, don't be frightened to lean on each and tell each other exactly how and what you are feeling.
I will PM you my phone No. just in case you need to talk, don't feel obliged. It's there if you need it....
Sue, I am so very sorry. My heart is heavy for you. I have wondered how he was going....but was afraid to ask.
I have no profound words of wisdom that can make you feel better and I cannot imagine the grief that goes with losing your child, but please know that you are in my thoughts.
Sue, I am so sorry this has happened to your dear son Stephen. Your feelings are understandable. How powerless we feel and how complex our feelings are as parents. Stephen, you and your family are foremost in my thoughts and prayers. May God be with you all today and always. You are not alone. John
Stephen passed away tonight (27th August) at 9.43 p.m. He died very peacefully with no pain and a smile on his face. If you have to watch a son die, it's probably the best way to go. I feel huge relief that the fight is over for him. I've had many tears and also tried to be strong for my remaining daughter and son. No doubt there will be many more tears to come but wonderful memories of the special young man I had the privilege of being mother of.
I feel extremely privileged to have shared a major part of my life with this gorgeous young man
Stephen passed away tonight (27th August) at 9.43 p.m. He died very peacefully with no pain and a smile on his face. If you have to watch a son die, it's probably the best way to go. I feel huge relief that the fight is over for him. I've had many tears and also tried to be strong for my remaining daughter and son. No doubt there will be many more tears to come but wonderful memories of the special young man I had the privilege of being mother of.
I feel extremely privileged to have shared a major part of my life with this gorgeous young man
RIP Stephen xoxoxoxo
Gday...
Sincerest condolences to you and all your family.
John
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2006 Discovery 3 TDV6 SE Auto - 2008 23ft Golden Eagle Hunter Some people feel the rain - the others just get wet - Bob Dylan
So sorry Sue, Parents are not designed to outlive their offspring. It's an impossible time that I wouldn't wish upon anyone. Don't try too hard to be strong for your other son and daughter, they need to be able to see the grief and suffering that you are feeling, so that you can comfort each other as a family unit.